Guatemala Again!

I pack my stuff for Guatemala: work pants, work shirts, work shoes. I say ”Good bye” to Dad at airport. I fly in the airplane. I sleep on airplane. I woke up in Guatemala. I show passport.  And then I wait.  I go to the coffee shop from last year. Mom buys some coffee.  I wait for the bathroom.  I remember no toilet paper in the toilet.  I see old friends at the coffee shop.  I give pictures from last year.  I listen to Oula music at the coffee shop. I make new friends at the coffee shop.  I make and share pot holders again. I wait for Aunt Laura, Uncle Jonathan Schyler, Olivia and Bremen.  It is fun and I am tired.  I take a nap.



I ride the bus.  We drive through Guatemala City. I take a nap. I look out the window.  I see Guatemala again!  It is fun.  Bus gets to San Raymundo.  The bus takes us to Bomenera. I remember Bomenera from two years ago.  It is the same.  It is different. It is bigger and improved. I see Old friends. I see swimming pool. I see my friends, the cooks again!  I find my room. I unpack my stuff and get ready for Monday, cement day.  Aunt Laura has a meeting.  She tells all the rules for Guatemala:  NO toilet paper in the toilets. Hah! I know this rule!  Cooks make us delicious dinner. It is fun to be in Guatemala again. Uncle Jonathan has a meeting:  I am excited about cement day; I am scared that I will get sick.  I go to the bed.  I am tired—not much sleep on airplane.



Monday morning I get up early–6:00.  Breakfast is at 6:30 and on the bus by 7:00.  Well, a little bit late. They had to wait for me but I tried to be quick! We ride on bus. We go to a new family. We unload Brandon’s truck. I help carry tools. I am excited. I am looking for Heather and Brandon. We have circle-up with Heather and meet our family. We have a plan for the day: prepare foundation and then pour cement.  Uncle Jonathan wants to pour before lunch!  Wow! We have to work fast! I help with organize supplies and get ready for cement.


Day at the Bazaar

January 3 we took a quiet rest day at our cottage in the morning. I work on feelings notebook. I find laundry to take to Oma’s house.


Before lunch we go to the Bazaar. It is lots of fun. I listen to Oula music. I take lots of photos. Morielle is silly. And then matthan is silly.

And then Mathalia is silly. Morielle found shoes to try on. Then she found a funny wig. Matthan tried the wig too. I found crazy glasses and I took a selfie.



We find a place to eat lunch. Matthan talks his new language. It is funny. He talked funny. I did not understand. But lunch was delicious.

He must have said it correctly.

It was rainy windy winter day in The Netherlands. My mom wanted a photo with a fake cow and a real canal in The Netherlands. Silly Mom.



Mathalia’s Dutch Photo



We go to the shopping. I stay in the car with Morielle. Morielle is tired. I am silly. Matthan buys food for supper.


Mathalia is silly


We surprised Oma: we came for supper and Matthan is cooking!  It was funny. Oma thought it was a good idea. She made healthy french fries. Matthan made chicken. It was fun! It was a very nice day at the Bazaar for lunch and at Oma’s house for dinner.


Morielle Comes!

I go to the airport in Amsterdam again. I wait for Morielle. I look for her red coat. I hear lots of speaking Turkish. Her airplane is coming from Istanbul. But really she was coming from China! I have not seen her for a year. Last year I visited her in the Taklamaken Desert.


Anyway Mom and I were watching and then . . . she poked us! She was there–we hadn’t seen her red coat!  She wanted lots of hugs.  Just like Matthan, she said, `squeeze Mathalia!’ Lots of selfie’s too.


We took her to the little cottage. She loved it.  We hung out.  She brought Chinese Downton Abbey which was fun for me and Mom.  And she brought Yoga on her computer. And she brought lots of love and joy, of course!


morielle comes07

So happy with Oma!

We hung out at Oma’s house.  We did puzzles and internet.


We went to another North Sea Beach  It was very windy and cold. I take picture of the ocean.  I take picture of the sand. I walked on the beach. I saw lots of sand.  Some sand was dangerous.  Mom said it was `quicksand.’ I walked on the safe sand with Mom, Dad, and Morielle. Morielle danced with me because it was so cold. It was fun.


We hung out at Tante Pien’s house and ate yummy dinner. I took of photos of food, fun, and fancy things. I take picture of cat and cows.  I like Christmas decorations at Tante Pien’s house. I ate meatballs, mashed potatoes, salad, tomatoes, dressing at Tante Pien’s house.  I take picture of good food.



Days of Jet Lag

My trip to The Netherlands was very fun! Today I worked very hard at home. No log-in slips at The Writing Center today so I balanced my checkbook and went to the Bank with Mom.  I saw lots of friends at  the University and I heard Oula Dance Exercise Music in the U-C.  After lunch there was more paperwork to do and then tons of laundry!  I was so quick because I wanted to look at photos and write a blog post.  Yeah!  I got it all done!

I was a little sleepy at Oma’s house after the airplane trip. We ate a nice Dutch lunch which means lots of cheese, meat and chocolate sprinkles on bread. Oma and Tante Ellie wanted to go to the Monastery to look at Nativities.  Oma thought I might want to take a nap.  `No way!  I want to go too!’

My Mom said it is best for jet-lag to skip the nap and just try to push through and then go to bed early.  And that is what we did. We looked at candles, pottery and lots of Marys and Joseph’s and Baby-Jesus-in-the-mangers, angels and donkeys.  It was fun. I took lots of photos.

We ate supper at Oma’s house and then Downton Abbey came on the television at Oma’s house!  My Mom was so delighted! It was funny because they were talking English and the words at the bottom were in Dutch.  So Mom was listening and Oma was reading.  Interesting.

Then we went to our little cottage. I had a little bed and I was so tired.  In the morning we made our own breakfast and unpacked our stuff. I wrote in my Feelings book; I looked at photos on the computer and took silly pictures of Dad and my socks.

Then Tante Pien and Tante Petra came over with Oma.  They brought a Christmas Tree for our little cottage and then we went for a walk on the beach.  I was hiking in the sand with the dogs.  Tante Ellie was not there. It was cold and windy but there were lots of people on the beach because the sun was shining.

After that we went grocery shopping and had dinner at Oma’s house with cousins Jente, Jilt and Ids.  It was fun and delicious!


Feeling Better Now!

I liked Thanksgiving 2014 very much but I was getting a little sick. I even had to stop playing games and lie down and rest at Grandma’s house.  I am thankful that I felt good enough to eat turkey and mashed potatoes but after that I was not good.

On Saturday I found out I had pneumonia. I had to take lots of medicine and I had to skip work and all my fun activities.  I was disappointed.  I took the week off.  I wanted to stay up and do fun things but my Mom wanted me to rest.  Sometimes I got to walk around the block.  I walked to my friend’s house. I took photos of her Christmas decorations.  I listen to Emma. I fall asleep.


Grandma gave me a new puzzle.  I fall asleep. My Mom finished the puzzle.  Silly Mathalia.

My friend Rona came to visit. I want to talk. I fall a sleep.  My Mom took lots of pictures of me falling asleep.  I wanted to do my fun activities. My Mom thought my falling asleep was funny.  Sometimes the camera woke me up and sometimes I sleep more.


I want get better.  My Mom says, `please rest.’  Take a nap.  I do not want nap but sometimes nap happened anyway.

After one whole week of being sick, my Mom asked me, `Do you want to go to the Symphony with Uncle Jeff?’  Of course I want to go to the Symphony with Uncle Jeff.  `Do you feel better?’   Of course, I feel better.  I want Symphony!

She said, `Okay.  But you have to take a nap.’  I took a nap and I got to go to the Holiday Pops! Concert with Uncle Jeff.  It was very fun!


Then on Monday she said that since I was sick, I might as well as get even more sick at the dentist.  Get it all done in one very bad week!  So I had to skip work again.  I was very disappointed.  I went in to see my job coach, Chelcey, and tell her `I feel better.’  And `I have to go to the dentist.’  She said I was very brave.


At the dentist I got some very cool glasses.  And I was very brave.  My mouth felt funny and I was eating only applesauce and noodles.  It was soft and delicious.  Now my mouth feels all better.


I was very thankful when I went back to work.  I see my friends. I go bowling. I go swimming. I go to Oula Class. I go to Pilates Class. I go to Bean & Boutique. I go to The Writing Center. I go to Prudential.  I go to the Mall Recital.  I go to the Christmas Recital.  I feel better!

Matthan Goes Away–fixed

Matthan is not here. I miss Matthan. Sometimes I get a snap chat from Matthan. Now my Snap Chat is stuck and I can’t get it unstuck.  This is not good.  I need Matthan to fix it. My Mom does not have a clue.

Anyway I had a lots of fun with Matthan this summer. He graduated from USC and then came home to get ready for his new job.

We had the most fun in the kitchen. We make breakfast pizza. We chop potatoes. We chop peppers.

We make casserole and meatloaf. We eat gluten-free and rice. Matthan washes the dishes and cleans the kitchen. I set table.

Matthan made coconut milk ice cream. I mix the ice cream. It hard. It is frozen.

Matthan went hiking and swimming and lots of fun Montana things. I take photos of Matthan.  Silly photos. Cooking photos.  Sleeping photos. Matthan turns on the music at our house:   Messiah Christmas music, church music. It is loud. It funny. I like it!  Mom comes home and then the music is not so loud.


We make pancakes together. Matthan makes the best gluten-free-blueberry-banana pancakes.

In October we had a practice `goodbye’ at the airport. It was a Sunday and I had my church dress on. Matthan had just bought his camera so we were having fun taking pictures of each other.

And then in November, we had the real goodbye. Matthan packs his stuff.  What a mess! Piles everywhere. And then only piles in the living room.  And then only luggage in the living room.  And then he is ready to go.

”Do you want to get up 4:30 to take Matthan to the airport?’

`No. I sleep in.’

”Okay say ‘good bye’ tonight. Give Matthan a hug.’

In the morning I checked and no Matthan in the bed. I took a photo. My Mom thought it was sad. It’s not sad. It is happy. Matthan is an adult. Matthan is independent. He is doing what he wants to do. We are giving thanks.


I am an adult.  I learn independence. I am doing what I want to do.  My Mom says that I am figuring it out. We are giving thanks.

Thanksgiving 2014

I talk to Morielle on the computer before breakfast. I eat little snack of breakfast. I am excited about Thanksgiving Day Dinner. I want hungry.


Morielle’s Thanksgiving is all done!


I go to the Grandma and Grandpa’s house. I take photos of Grandma cooking.  I make her crazy in the kitchen.


I ate mashed potatoes, gravy, cranberries, gluten-free apple crisp with dairy-free ice-cream. Yum!

I play Dutch Blitz with Mom, Grandma, Grandpa and Mathalia. Grandpa won. Good job Grandpa. I take a bathroom break. A long bathroom break.

`Hurry up Mathalia!  Don’t you want to talk to Matthan!’  I hurry up.



Talking to Matthan.


I talk to Matthan on iPad. It was funny. He was ready for bed and it was just afternoon for us.


I lie down and rest on the sofa. I need a power nap.


Resting . . . more to come!


I talk to Uncle Jeff on the iPad. It was funny. I hear his voice but I don’t see him. Mom push buttons then I see Uncle Jeff.




We eat very little supper together. I see Olivia’s piano playing on the iPad. I go home. I am tired. I take quick bath.


On Friday, I go to the doctor. And then I go to the hospital. It was crazy.  I have blood test. I was so brave. I have body poking. I was tough.


Now I lie down and rest at home and eat lots and lots of turkey soup. It is good. I take the week off. I want feel better.


Happy Thanksgiving!


November Craft Fair Weekend

Friday morning the Transition Conference was all done.  Afternoon was time to relax.  I wanted blog post about the Conference. No internet at home.  So my Mom and I went to the University Center.  I write blog post and I see friends on Campus. It is fun afternoon. Thank you friends to tell me links do not work.  Here is another try:

Assistive Technology

On Campus Activities without being a student

Show me the Money!

My Feelings pages in Health Care Transition Workshop.


Then my Mom said, `Okay, let’s go upstairs and find your table for the Craft Fair tomorrow.’

My table is #50. We found it!  My Mom said, `Okay, Mathalia, you have to remember! It will look a lot different.  After breakfast you come by yourself and you find Mom and Marilyn.’


And I did! Saturday morning I packed my lunch and pot holder bag and walked to the U-C and found my Mom and my friend Marilyn. Our booth was all set up and ready to go. `Thank you Mom!’

Marilyn sells Adult hats and Child-size hats. We had a fun day together. I saw lots of friends and sold lots of pot holders.


Grandma and Grandpa took us out for dinner at the restaurant! It was Chinese. It was delicious and a little bit spicy.

Mom was so tired. She said, ”Let’s skip Symphony and stay home.”

I said, ”No way! I want Symphony.”


I went by myself. Mom dropped me off. I gave my ticket. I found my seat by myself. I read the program by myself. I liked the music: Sleeping Beauty, Beauty and the  Beast. I saw my friend, Gingy. I said `Hi Gingy!’

After the Symphony, I called Matthan:

”This is Mathalia.”

`Hi Mathalia.  What do you want?’

`I want please pick up.’

`Okay, where are you?’

`I am at Symphony.’

`Okay, I will be right there. You watch for me from the window.’

Matthan brought me home.  Mom was sound asleep in bed.  So she got her sleep and I got my Symphony!  Thanks Matthan for the ride.

Sunday, I played games with Grandma and Grandpa.

Monday morning there was snow on the ground! It was crazy and I did not feel very good.  My Mom thought it was because I stayed up late to go to the Symphony.  Silly Mom it was not the Symphony it was the snow!


Missoula Transition Conference!

Sierra just finished her presentation about Depression and Disability. It was so sad. Now she feels better. She has a new house and a new job for speaking about mental health. I took pictures of Sierra. I like to hang out with Sierra and my Consumer Advisory Council friends. It was a fun Conference.


Wednesday started with a presentation about tools for independence at work. I like to present with Isaac and Theresa. I talked about my destination box.

Link to my PowerPoint that I presented in the workshop, Tools to help me be independent at Work:



Then I presented with Danielle, Sierra, Theresa, and Kim. They talked about going to college. I talked about things to do on Campus besides studying.  I work and exercise on Campus.

Link to my PowerPoint that I presented in the workshop, So You Want to Go to College:

Thursday morning we had our Consumer Advisory Council meeting.  I wore my Guatemala dress to show my friends.



In the after I helped with Show me the Money workshop. We played Bingo.

It was fun.

I presented with Tracy and Maclaen.


Link to PowerPoint for our Bingo game slide show for the worship `Show me the money’


My last presentation was my favorite. I was in the bathroom just before I was to present and the fire alarm went off!  It scared me—such a loud beeping.  My Mom had to come get me to go outside.  I hung out with Heather and showed her my portfolio.  She showed me her wedding pictures.  I love wedding photos: such a pretty dress!

Then it was time for the last workshop of the day. I showed my feelings notebook in Health Care Transition Workshop with Isaac and Kim.

I remember to drink water and go to the bathroom by myself. I looked smart and competent. I saw lots of Big Sky friends. I saw Weston who is a Senior. He will graduate 2015! I ate lunch with mom and old friends.  High School is all done for me.

We talked about Adult life choices.


My last presentation about my Feelings Notebook in the workshop:

Transition from Pediatric Health Care to Adult Health Care








Bison Range Friday!

Grandpa said, ‘Let’s go to the Bison Range on Friday while Matthan is still home.”

Oh dear! Friday is my day for Pilates. I want Pilates. I want Bison Range in


`Okay, Mathalia. We can pick you up after Pilates class on Friday.’

And then I changed my mind.

`I want skip Pilates.’

My mom thought this was a very nice adult choice!

So I got up very early. I ate a little snack and then Grandma and Grandpa picked us up.

We went to the restaurant. It was delicious. I ate eggs. I hope I feel okay.


Then we went to Bison Range. I saw snow on the mountains. I watch a movie. Matthan was silly because he was funny. I  took lots of photos with my camera. I showed photos to Grandma. She gave helpful comments: move a little this way or that way to get a good shot. We took a selfie. It was funny. Grandma’s first selfie!

I made potholders in the car because Craft Fair is coming up soon!

I took lots of Fall photos: yellow, orange, red, green, brown, gray colors; colors from leaves, grass, trees and sky. It was fun!

Then surprise Grandpa drove to Pete and Gingy’s house. Gingy showed me special place of grandkids’ toys. It was up a high ladder. Gingy helped me come down the ladder. I took a photo. I am not a kid. I did not play with the toys. I am an adult. I took a photo of the toys.

At home Mom said adult idea of delay gratification: 5 potholders and then photos and blog post. Yeah! I did it. It was a nice Friday. Next Friday I will go to Pilates.